Tuesday, March 27, 2018

My March 27, 2018, Certified Letter to the ACAAI Re: Cornstarch and Corn Syrup

March 27, 2018                                                                            [REVISED MARCH, 2019]


American College of Allergy, Asthma & Immunology (Certified)
85 West Algonquin Road, Suite 550
Arlington Heights, IL  60005

American College of Allergy, Asthma & Immunology:

            For the safety of the corn allergy population, I am appealing to your organization to remove the following statement from your website:

            Most corn-derived products, like cornstarch and high-fructose corn syrup, do not contain corn protein. If you have a corn allergy, you do not need to avoid these products.”

            This statement is false and misleading (per my own personal allergic reactions), and contradicts other declarations by the ACAAI related to corn allergies:

1.       “Overview
“Allergic symptoms of a corn allergy develop when a person’s immune system becomes sensitized and overreacts after eating corn or foods containing corn-based ingredients, or after being exposed to corn pollen. Corn and corn-derived products are used in many processed foods, as well as in many other everyday items.”
2.      Corn Allergy Management and Treatment
“Avoid corn and corn-derived products.”
3.      Symptoms
“Published case reports have reported life-threatening anaphylactic reactions to corn-based products such as a dextrose intravenous solution and cornstarch used to powder surgical gloves.”
[Why would cornstarch be safe for consumption?]
4.      Management and Treatment
“Corn-based ingredients can also be found in nonfood items as diverse as shampoo, toothpaste, IV solutions, vitamins, cosmetics, crayons, dishwashing liquid, clothing,
paint, plastics and pet food. Cornstarch, for example, can serve as both an adhesive and a coating in paper products, and is even used in disposable diapers.”
        
            I was so alarmed by this declaration by the ACAAI concerning cornstarch and high fructose corn syrup, that I initiated a petition with MoveOn.org [1] requesting that your organization remove or revise this statement from your website for the safety of the corn allergy population.  To date, we have received 180 signatures with personal testimonies confirming that cornstarch and corn syrup must be avoided by anyone allergic to corn.  In addition, I also wrote a blog post refuting your claim regarding corn protein, “Removing a Food Protein Does Not Guarantee an Allergen Hypoallergenic.” [2]

            As you are aware, the corn allergy population can consume very few processed foods and no commercially-processed meat, poultry, seafood, fruit, or produce due to government-authorized corn-derived acid washes; therefore, it is a daily struggle to survive with this devastating allergy.  The testimonies from parents of corn-allergic infants are heartbreaking, since there are no corn-free formulas to provide to these struggling babies.  Many corn-allergic individuals must have their medications compounded to exclude corn (used as a common filler), and struggle just to find safe, corn-free drinking water (tap water contains corn due to corn-derived purification chemicals).  I was diagnosed with a corn allergy in December, 2011; and only tested at 1+ to corn on skin-scratch testing; yet my reactions to corn/corn derivatives can be quite severe.  On March 15, 2018, I conducted an oral challenge of Argo cornstarch (documentation enclosed); [3] and based on my allergic reaction, I can only conclude that cornstarch must be avoided for anyone allergic to corn.  I was also going to conduct an oral challenge of corn syrup; however, based on my prior allergic reactions to corn syrup, I have decided not to proceed with this oral challenge. 

            Since hospitals are not mandated to stock corn-free foods, liquids, or medications (compounded to exclude corn); corn-allergic patients are required to supply their own corn-free products while hospitalized.  What if our hospital admissions were the result of an emergency?  I have appealed to the U.S. Department of Health and Human Services, my state congressional representatives, and the FDA to issue an emergency mandate requiring that hospitals stock corn-free products for the safety of corn allergy patients. [4], [5]  Due to disturbing personal testimonies confirming that the majority of medical professionals do not understand the critical, potentially life-threatening difference between ascorbic acid and corn-derived ascorbic acid, citric acid and corn-derived citric acid, or that dextrose is corn sugar manufactured from cornstarch (D-glucose), etc., I recently completed my 3-year project of contacting the majority of our nation’s hospitals regarding the protocol for treating corn-allergic patients. [6]   After a compounding pharmacist told a corn-allergic patient that “cornstarch is not really corn,” I then immediately contacted the majority of world-wide pharmaceutical companies with an urgent appeal that they educate pharmacists about the dangers of NMIs (non-medicinal ingredients) in drugs. [7], [8]

            From my own research, strict avoidance of one’s allergen is always advised; because it may lead to an anaphylactic reaction, which is also confirmed on your website:  “Symptoms of a food allergy can range from mild to severe. Just because an initial reaction causes few problems doesn’t mean that all reactions will be similar; a food that triggered only mild symptoms on one occasion may cause more severe symptoms at another time.”  Therefore, I urge the ACAAI to advocate for strict avoidance of one’s allergen, which includes any derivatives of an allergen.
        
            Thank you for your attention to this critical issue.  Please feel free to email me at cornallergyinitiative@gmail.com.

Sincerely, 

Diane H., Corn Allergy Advocate
Corn Allergy Advocacy/Resources
https://cornallergyadvocacyresources.blogspot.com/
Email: cornallergyinitiative@gmail.com
Twitter: @CornAllergy911

Encl.


References:
[1] This petition has since been deleted. 
[2] “Removing a Food Protein Does Not Guarantee an Allergen Hypoallergenic”
[3] “Argo Cornstarch Oral Challenge to Test Hypothesis Presented by the ACAAI”
 [Conclusion: If you are allergic/intolerant to corn, do NOT consume cornstarch. I suffered a significant allergic reaction as a result of this oral challenge.]
[4] “My February 25, 2018, letter to the U.S. Department of Health & Human Services Re: mandate that hospitals stock corn-free foods, fluids, & drugs for the safety of corn-allergic patients.”
[5] “My Submission to The Joint Commission on Behalf of Corn-Allergic Patients.”
[6]  United States Hospitals/Health Systems Contacted Re: Protocol for Treating Corn-Allergic Patients
[7] “Pharmaceutical Companies Contacted Re: Protocol for Treating Corn-Allergic Patients”
[8] “BCPharmacists, "Warning: corn-related allergens . . ."



APRIL 16, 2018, UPDATE:
Since the ACAAI has not redacted their potentially life-threatening declaration regarding cornstarch and corn syrup, I filed a complaint with the Illinois Attorney General's office requesting this statement be amended.

APRIL 20, 2018, UPDATE:
I filed a report with the Illinois Better Business Bureau against the ACAAI, since they are endangering the lives of corn-allergic individuals with this false statement.

APRIL 25, 2018, UPDATE:
I filed a report with the FTC against the ACAAI, since they are endangering the lives of corn-allergic individuals with this false and potentially life-threatening declaration.


JULY 16, 2018, UPDATE:
My Tweet to the ACAAI, @ACAAI:

I have informed you with certified documentation that your statements regarding cornstarch/corn syrup are false.  You are endangering lives.
"Whoever engages in any conduct with intent to convey false or misleading information . . ."
https://www.law.cornell.edu/uscode/text/18/1038

JULY 27, 2018, UPDATE:
My Tweet to the ACAAI, @ACAAI:

Board-certified physician warns against consuming cornstarch and corn syrup if you are allergic to corn.  What other proof do you need?
"Corn Allergy and Following a Corn-Free Diet," Daniel Moore, MD, June 15, 2018, verywellhealth


AUGUST 29, 2018, UPDATE:
The U.S. Department of Health and Human Services indicated in my phone call to them that I will most likely need to seek legal counsel to address these false statements posted on the ACAAI website. 

In my numerous contacts with the ACAAI, I appealed to them to cite at least one source supporting their claim regarding cornstarch and corn syrup (I provided the ACAAI with numerous articles refuting their claim).  The ACAAI indicated that there were too many articles to cite, and told me they are not required to cite these sources.  This is incomprehensible to me, since they are endangering the lives of corn-allergic individuals.  Many medical professionals refer to the ACAAI website, and believe these claims without questioning their validity.

AUGUST 31, 2018, UPDATE:
My Tweet to the ACAAI, @ACAAI

"Corn Allergy," Penn State Hershey Children's Hospital
"Any of the following ingredients listed on the label indicate the presence of corn protein, and must be avoided: . . . Cornstarch, Corn sweetener, Corn syrup, Corn syrup solids, High fructose corn syrup" 

I called the ACH Food Company, 1-800-723-3648, regarding the presence of corn protein in Argo cornstarch.  They confirmed that Argo cornstarch contains 0.26 grams of corn protein per 100 grams of cornstarch.  I then called the ACAAI with this information, and once again appealed to their organization to remove their false claim regarding cornstarch from their website.


MARCH, 2019, UPDATE:
The ACAAI revised their statement to:  “Most corn-derived products, like high-fructose corn syrup, do not contain corn protein. If you have a corn allergy, you may not need to avoid these products.”

Although I appreciate them removing the reference to cornstarch, they should also remove this statement based on my own research.  They continue to jeopardize the lives of the corn-allergic consumer.

Removing a Food Protein Does Not Guarantee an Allergen Hypoallergenic
https://cornallergyadvocacyresources.blogspot.com/2017/12/removing-food-protein-does-not.html





ADDED APRIL, 24, 2018:  
(Blog posts organized into one post for easy reference.)

Critical Corn Allergy References, Studies, Statistics, & Petitions
(Includes my submission to The Joint Commission, Congress, FDA, & U.S. Dept. of Health requesting emergency mandate that hospitals stock corn-free foods, liquids, & drugs.)





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